What are the laws related to genetic testing in the United States?
In the United States, laws related to genetic testing vary from state to state. In Hawaii, the use of genetic testing in reproductive law is regulated by the Hawaii Revised Statutes, Title 18, Chapter 323, which states that all genetic tests must be performed in accordance with professional standards. The laws also state that any genetic testing of an embryo or fetus must be done with the written informed consent of the parents or legal guardians. Furthermore, the use of genetic testing of an embryo or fetus must be done with the primary purpose of providing reliable information to the parents to be able to make an informed decision about the pregnancy. Additionally, all genetic testing must be conducted in accordance with the federal Genetic Information Nondiscrimination Act (GINA) of 2008. This act states that any genetic information obtained through genetic tests must be kept confidential and can only be used for medical purposes, and that employers and health insurance providers are prohibited from discriminating against individuals based on their genetic information. Finally, parents in Hawaii have the right to receive counseling from a trained provider before, during, and after any genetic test is performed. This counseling is provided to ensure that parents understand the potential implications of a positive test result and provides an opportunity to discuss any questions they may have.
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