What is the scope of legal protection for genetic materials in biomedical research?

In Illinois, the legal scope of protection for genetic materials used in biomedical research is determined by state and federal laws. The strongest protection is provided through the Federal Genetic Information Nondiscrimination Act (GINA). This law prohibits discriminating against individuals based on their genetic information in health insurance and employment. Illinois also has its own laws that provide protection for genetic materials in biomedical research. The Illinois Genetic Information Privacy Act (GIPA) gives patients rights related to their genetic information, such as the right to review their genetic profiles and to request a copy of their records. GIPA also requires that medical and genetic research institutions inform patients of the possible risks and benefits of genetic testing. In addition, Illinois has laws that provide researchers with protection from liability for potential harms resulting from the use of genetic materials in their research. This includes the Common Rule and the Illinois Genetic Privacy Act, which provide researchers with legal guidelines to follow to ensure the safety and privacy of the genetic materials they use. Overall, Illinois has put in place a variety of laws that protect individuals from the misuse of genetic information in biomedical research. These laws provide researchers with guidance in protecting the genetic materials they use, while also giving individuals the right to review and control the information collected about them.

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