What is the scope of legal protection for genetic materials in biomedical research?

Biomedical research in New York is subject to a range of laws and regulations for the protection of genetic materials. These legal protections ensure that research is conducted ethically and with due regard for the rights of those who are being studied. One of the most significant legal protections for genetic materials in biomedical research is provided by the federal Genetic Information Nondiscrimination Act (GINA). This law prohibits the use of genetic information in making decisions about employment, health insurance, and other activities. The Act also prohibits employers from asking genetic-related questions on applications or during the interview process, and from receiving genetic information without the consent of the applicant or employee. Other legal protections for genetic materials in biomedical research include the New York State Public Health Law, which requires informed consent of a patient and their doctor before conducting genetic research. The New York State Human Rights Law also states that it is illegal for an individual or entity to discriminate against a person in any aspect of employment due to their genetic information. In addition, the New York State Privacy of Medical Information Act prevents the sharing of a person’s genetic information. In sum, the legal protections for genetic materials in biomedical research in New York are broad and comprehensive. These laws and regulations ensure that research is conducted in an ethical manner and that the rights of those being studied are respected.

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