What is the scope of legal protection for genetic materials in biomedical research?
In Washington, the scope of legal protection for genetic materials used in biomedical research is outlined in legislation passed by the state, such as the Washington Privacy Act and the Genetic Privacy Act. These laws, along with the federally enacted Genetic Information Nondiscrimination Act, protect genetic materials from unauthorized access and use. Under the Washington Privacy Act, individuals must give their written consent before their genetic data can be collected, used, or disclosed. The Genetic Information Nondiscrimination Act further prohibits employers or health insurers from using genetic information to make decisions about employment or insurance coverage. The Genetic Privacy Act goes even further and makes it illegal for any person or entity to operate a genetics laboratory without a valid permit. The permit sets forth the privacy and security protocols that the lab must follow, such as the measures used to protect the genetic data from unauthorized access or use. In addition, both the Genetic Privacy Act and the Washington Privacy Act provide for criminal and civil penalties for unauthorized access or use of genetic data. These laws seek to ensure that genetic information is kept secure and out of the hands of those who could use it for malicious purposes. Overall, Washington has established a legal framework to protect genetic materials used in biomedical research from unauthorized access and use. These laws are important in safeguarding the privacy and security of individuals’ genetic information.
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