What are the laws related to genetic testing in the United States?

Genetic testing laws in the United States vary by state. In North Carolina, laws related to genetic testing are relatively limited. In North Carolina, genetic testing may be performed with the informed consent and authorization of an individual, as long as it is conducted in accordance with standards established by the state. Results from genetic tests may not be used to deny or limit coverage or increase premiums for health care insurance. Additionally, genetic tests may not be required as a condition of honorable discharge from the military. A minor may be tested for genetic diseases, only if the parent or legal guardian gives consent. Also, an adult’s genetic information may be released to law enforcement, only with the individual’s written consent. If both parents are dead, a guardian may give consent. North Carolina law also states that doctors who offer partial genetic tests and those who deny genetic testing are not held liable for any negative decisions. Furthermore, no doctor may deny a patient the right to be tested on the basis of gender or race. Physicians may refuse testing, however, if they genuinely believe it is not in the patient’s best interest to undergo testing. Overall, North Carolina’s laws concerning genetic testing are relatively limited. While they protect the rights of individuals to receive screening and testing, they also put some restrictions in place to ensure the safety of those individuals.

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What are the laws related to genetic testing in the United States?

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